Nathan Banjany inspires the SMA A-WEAR-Ness Jewelry Line

Nathan Banjany is super duper SMA Kid to Kristin and Alan Banjany. The Banjany’s are wonderful parents who have put their lives on hold to focus on Nate’s SMA care and needs. Nate has the cutest little face, every time  I am looking at a new picture that Kristin posts, his sweet little soul shines… [Continue Reading]

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Baby GettyOwl making a difference in SMA……

Getty storm is the daughter of Mark Storm and Kate Mathany….so now I am sure you are wondering where did she get that adorable nickname……check out her blog and follow her story . Getty has the most amazing eyes, when you look into them it is like she is seeing your soul, you can tell… [Continue Reading]

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Avery’s Race for a Cure

Avery Lynn arrived in a hurry at 3:56 p.m. on April 30, 2008. She was perfect. Dark hair, dark eyes, kicking and screaming. All was going great.  At 2 months old we took her in for her check up and shots and asked the doctor why she wasn’t trying to hold her head up and… [Continue Reading]

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Stella

The Turnbull family in honor of Beautiful Stella Bella was donating $4111.90 to The Sophia’s Cure Foundation restricted to the SMA Gene Therapy Program. The Turnbulls had raised this money through a personal donation and their SMA garage sale where they sold “Miracles Happen” t-shirts. Plus Travis’s company’s own Pella Rolscreen Foundation would be matching… [Continue Reading]

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Lizzy

“My name is Elizabeth Lee Hallam, I was born on September 29, 2003. I was diagnosed with Spinal Muscular Atrophy on May 11, 2004. I am a smart beautiful child and I am special because I am going to help fight SMA by helping with the clinical trials to save children like me.” Elizabeth is… [Continue Reading]

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